RSS Feed

Fall 2019 Reconnect Meeting

Please join us for our Fall 2019 Narcolepsy Support Group Meeting!  These meetings are for PWN and their supporters.  All are welcome!  Bring your questions, your insight, your stories…. It has been a while, so let’s catch up!  Hope to see you all there!

Saturday, August 24th  10am – 12noon

We will be meeting at a new location, not far from the old one at Tilden Community Center.  We will meet in the large conference room, “Old Mill Ruins”, at the Pleasant Hill Library in Hastings, MN.  (1490 S. Frontage Road, Hastings, MN)

Summer 2018 Meeting

Please join us for our Summer 2018 Narcolepsy Support of Minnesota meeting!  These meetings are for PWN AND their supporters!  It will be held from 10am to noon at the Hastings Community Education Building (Tilden Community Center) at 310 River Street, Hastings, MN  55033.  Bring your questions, your insight, your stories.  Hope to see you all there!

December Meeting

The date of the December meeting has changed from December 2nd to December 16th. Hope to see you there!

Fall Meeting

Saturday, September 30th

Please join us for our Fall Narcolepsy of Minnesota Support Group Meeting! These meetings are for PWN and their supporters! Bring your questions, your insight, your stories! Hope to see you all there!

Narcolepsy Network Youth Ambassador Program

Narcolepsy Network (NN) is now accepting applications for the Youth Ambassador Program. This is a national program designed to train promising young members of NN to advocate for people with narcolepsy. Youth Ambassadors will learn how to be leaders and representatives of NN all while building friendships to last a lifetime.

Each Youth Ambassador (YA) is expected to complete at least three advocacy activities. Some examples include:
  • Present to a group of ten or more people (through school, support group, religious organization, etc).
  • Hold one community fundraiser for NN (car wash, bed race, walk, bake sale).
  • Attend an advocacy event and publish one article about it.
  • Create one piece of art/poem/journal entry and share it online.
Training for the YA Program will take place on Friday, October 27, 2017 from 9:00 AM-5:30 PM at the Marriott Portland Downtown Waterfront in Portland, Oregon (before the start of the Annual Conference). There is a $99 fee for all participants in the program. Each YA will be responsible for travel and hotel expenses. Lunch will be provided on the day of training. Scholarships are available.

To read more about the requirements of the Youth Ambassador Program or to apply online, please see this linkApplications must be submitted online by September 8, 2017. Applicants under 18 years old must also have a parent or legal guardian submit this form. All applicants will be notified of their acceptance to the program by September 15, 2017. Questions about the program can be emailed to Claire Crisp at

May 20th Meeting

Our next meeting will be held on May 20th, 2017 at the Tilden Community Center in Hastings.  Hope to see you there!

February 2017 Meeting!

Our next meeting is confirmed for Saturday, February 25th from 10am to 12noon!  It will be held in the same location as our previous 2016 meetings at the Tilden Community Center in Hastings, MN.  We are excited to be starting our second year as the Narcolepsy Support of Minnesota group…. so this is just the beginning, with more meetings, support and info. to come!  Join us for our first meeting of 2017!  Hope to see you all there!

Holiday Party / December Meeting

Jingle, jingle, its time for us to mix and mingle!  Please join us for our December meeting and holiday party! 

The meeting will be held on December 3rd at 10:00am at the Tilden Community Center in Hastings, MN. Feel free to bring a snack to pass.

SURPRISE! We have a signed copy of Julie Flygare’s book Wide Awake & Dreaming we will be raffling off at the December meeting!

Hope to see you all there!julie

Meeting Reminder

Just a reminder of our upcoming meeting on September 24, 2016.  The meeting will be held at Tilden Community Center located at 310 River Street Hastings, MN 55033. 

Narcolepsy Network Conference Scholarships

The annual Narcolepsy Network Conference is being held October 21-23rd, 2016 in Orlando Florida. Narcolepsy Network is offering financial aid to NN members who are unable to attend due to financial restrictions. Three types of scholarships are available:

  • Registration Scholarship covers the cost of conference registration. Registration includes all conference sessions as well as breakfast and lunch on Saturday and Sunday.
  • Hotel Scholarship provides the recipient with a room, shared with a roommate, at the conference hotel on Friday and Saturday nights of the conference weekend. Narcolepsy Network will match all hotel scholarship recipients with a roommate. If you have a roommate, then Narcolepsy Network will apply a credit of one hotel night plus tax to your room sometime during the conference. You and/or your roommate will then be responsible for the rest of the hotel bill.
  • Travel Scholarship provides a maximum of $400 for car, bus, train, or airline travel to and from the conference. Travel scholarship recipients are reimbursed for travel costs, up to the awarded amount, following the conference.

The deadline for applications is August 5th, midnight Eastern time.

For more information on the scholarships and to apply, click the link below.